The last dose of meds are in & we are waiting on blood this morning. Tyler's hemaglobin dropped to 6.4 so he needs blood before we can leave. His levels dropped again by 2 points for the creatnine so that means his kidney function is getting better.
Thank you for your continuous prayers!
Stacie
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8/27/11
8/26/11
August 26th
Things are looking up for Tyler today. The acid level went from 10 to 0 overnight. This is really good. The kidney levels are better today. The WBC's & platelets are climbing up. The hemoglobin dropped but he did not need blood today.
Tyler is in great spirits & continues to surprise us all. He has been having a good time cruising around & visiting with the nurses. They are all big fans of Tyler.
The plan is to head out tommorrow after his boost. We are looking forward to going home. Please continue to pray for Tyler.
Stacie
Tyler is in great spirits & continues to surprise us all. He has been having a good time cruising around & visiting with the nurses. They are all big fans of Tyler.
The plan is to head out tommorrow after his boost. We are looking forward to going home. Please continue to pray for Tyler.
Stacie
8/24/11
August 24th
We went back to clinic this morning to meet with the kidney doctor & the transplant doctor. Donnie & I were pretty nervous about this appointment because we were anticipating a curve ball. WELL WE GOT ONE!
Well first of all Tyler's #'s looked really good today. His platelets went up again. They were 19 today & hemoglobin was 8.3 & WBC's were 4.5. So this was a very positive surprise.
Tyler's kidneys are functioning at 40%. They are getting worse. His medications have been adjusted, which Tyler is thrilled because it means he can back off the pills. It also means that the treatment for the Aplastic Anemia has stopped because the medication is causing alot of damage to the kidneys. So with the adjustments that have been made & a 3 day treatment starting tommorrow we will know quickly if the kidneys will recover. If the kidneys recover we will be delighted. If they do not, it will mean a kidney transplant.
Tyler's bone marrow has to be stable & back to normal to get a kidney transplant, so he will need a bone marrow transplant first. After he recovers from that transplant, he will have a kidney transplant.
It has been a stressful day today. Please pray for Tyler & please pray for comfort & strength.
Stacie
Well first of all Tyler's #'s looked really good today. His platelets went up again. They were 19 today & hemoglobin was 8.3 & WBC's were 4.5. So this was a very positive surprise.
Tyler's kidneys are functioning at 40%. They are getting worse. His medications have been adjusted, which Tyler is thrilled because it means he can back off the pills. It also means that the treatment for the Aplastic Anemia has stopped because the medication is causing alot of damage to the kidneys. So with the adjustments that have been made & a 3 day treatment starting tommorrow we will know quickly if the kidneys will recover. If the kidneys recover we will be delighted. If they do not, it will mean a kidney transplant.
Tyler's bone marrow has to be stable & back to normal to get a kidney transplant, so he will need a bone marrow transplant first. After he recovers from that transplant, he will have a kidney transplant.
It has been a stressful day today. Please pray for Tyler & please pray for comfort & strength.
Stacie
8/22/11
August 22nd
Tyler's platelets went up again by two points. Platelets are 16, WBC's are 11, & hemoglobin is 6.8......so he is getting blood today. The doctor did a blood test last week & it showed that Tyler's bone marrow is starting to produce new cells. We saw the Nephrologist this morning & Tyler is having kidney problems & the kidney's are only functioning at 50%. He has gotten more blisters again & that is a big concern because of infection. Hopefully they will go away soon. Please continue to pray for Tyler. We are very appreciative!
Stacie
Stacie
8/15/11
August 15th
Tyler went for a check up this morning & we have wonderful news!!!! He did not need blood or platelets today. He has not had platelets in over a week. He got blood once last week. His white blood count is wonderful & has been for over a week now. We are absolutely thrilled about this! We see God working in his body! It is wonderful! We are praying that it will hold steady & that it will keep getting better each time he goes back.
His gall bladder is much better now. He can finally eat real food again & he wants to eat. I am excited to cook real food!
Tyler keeps telling us that he is getting better & he can feel it.
Please continue to pray for him & thank God for working in him.
Stacie
His gall bladder is much better now. He can finally eat real food again & he wants to eat. I am excited to cook real food!
Tyler keeps telling us that he is getting better & he can feel it.
Please continue to pray for him & thank God for working in him.
Stacie
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