July 26th

Tyler got out of the hospital the following week. He is doing good. He turned 14 yesterday. That was exciting! Today his WBC"s are 2.3, platelets are under 5, & hem is 5.4. So the numbers are not good but he is getting a boost today. He is doing very good. Please continue to pray for him.

Stacie

Monday July 18th

Tyler came back into the hospital on Saturday evening. He is in alot of pain when he eats & we were not able to manage the pain at home. He is having an MRI later today to see if that will shed some light on his gall bladder. Thank you for your prayers!

Stacie

Monday July 11th

We came in this morning for the first of 3 visits a week. Tyler had alot of swelling this weekend and had a low grade fever. He does not have a fever this morning....so that is good. His white count is still very low. He is getting platelets & then we are going back home! He will be getting an extra IV at home, so now it will be 2 a day....but that is better than staying in the hospital. Please continue to pray for him & thank you so much.

Stacie

Thursday

Yeah!!!! We are going home today!!!!!!!!!

Wednesday

We are still here. We almost got to leave today but it did not work out. Tyler got the last treatment today & his body is trying to recover. We may come home tomm. & it will be so exciting! He got platelets today. His white count is hanging out around 1.2 & we really want to see that come up. He feels really good today. He has a great appetite & he ate all 3 meals today & that is a huge improvement. He has not eaten 1 full meal in months...so 3 is outstanding!!

He is really anxious to get better & he is already talking about hunting season.

Thank you for your prayers!

Stacie

Tuesday

It is day 10. Tyler is feeling better today & ate breakfast & kept it down. Very exciting!! His white count came up slightly. It was 0.7 yesterday & 1.2 today. He got blood again this morning. Hopefully he will be able to come home within the next few days. Please continue to pray for him.

Stacie

July 4th

Well today was a better day. Tyler slept most of the day because he got the second dose of the "atom bomb." He is getting better, but he needs to start eating. The CT scan results came back & it is swelling in his neck from all of the fluid. The doctor came in this evening & said that the CMV virus cannot be detected anymore in Tyler. This is wonderful news. He will get another treatment on Wednesday & hopefully be through this phase. His white count is extremely low. We need that white count to increase. If the white count increases, he can come home. Please continue to pray for him. Thank you!

Stacie

Sunday

Tyler is feeling better this afternoon. He does not have a fever today. His counts are very low today. He got blood & platelets this morning. He had another CT scan this morning because they saw something in his neck, but we dont have the results yet. Please continue to pray for him.

Stacie

Saturday

Well Tyler spent most of his day sleeping. He was up all night friday vomitting & had a high fever. He is exhausted! This virus is taking a toll on him & on his organs. His liver, gall bladder, & now kidneys are being compromised. They did another CT scan this morning because they thought he had pneumonia. He has a little something going on in his lungs but they said it looked alot better than they thought it would. They are watching him closely just in case it gets carried away. The doctors gave him the "atom bomb" today which is a bottle of IVIG. It is supposed to kick this virus to the curb. This is their big defense when all else fails. They said that his body will recover when the virus is gone. He has to be completely free of any germs before he begins chemotherapy in a few weeks for transplant. We are still praying for healing before that happens!

Stacie

Friday

Tyler had a rough day today. He is getting sick to his stomach all day long & the stomach pain is increasing quickly. The doctors want to put him back on the pain pump. Donnie & I wrestle with this because it is masking the problem & he has to be weened off of it to come home. We also want him to be comfortable. He had an ultrasound of all of his organs & a ct scan today. His liver & spleen & gall bladder are all enlarged. His skin is yellow as well as his eyes and his bilirubin is through the roof. They are going to make a decision tomm. morning on how they are going to fix the problem which is ultimately the liver.....we think. It has been a very challenging day. It is very hard to watch him suffer. We hope tomm. will be better.

Stacie